My wiki:Privacy policy

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Because we want to understand how our wiki is used, we collect some information when you:

  • Make public contributions
  • Register an account or update your user page
  • Use the mycarebudget.org site and its pages
  • Send us emails or participate in a survey or give feedback.

For a full Terms of Use please just click here.


This information may be used for research as part of a Newcastle University PhD project entitled "Designing socio-technical interventions to support the infrastructuring of state funded healthcare budgets":

  • What is this study: We are researching into the work required to operate a team of paid carers / Personal Assistants based on state funding. This research is important as the responsibilities placed on those with the funding need to be understood, so the work demanded can be alleviated.
  • Your participation: Your participation in this research is voluntary and you may choose to withdraw your participation at any time without any penalty by no longer using this website. If you do use this website then your data may be used for this research study.
  • Confidentiality: This website is publicly available. If you register, it is optional to use any name or you can use a psudeonym. If your data is extracted to become part of that research study then you will be confidential within that study. All information will be stored anonymously within that research project. We will be writing up parts of these participations at which point we will anonymise what you say.
  • GDPR - General Data Protection Regulation: As a university, we use personally-identifiable information to conduct research. When we use personally-identifiable information from people who have agreed to take part in research, we ensure that it is in the public interest. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your right to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible. If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful, you can complain to the Information Commissioner’s Office (ICO) at https://ico.org.uk/global/contact-us/ Our Data Protection Officer can be contacted via contact@mycarebudget.org.

We are committed to:

  • Describing how your information may be used or shared in this Privacy Policy.
  • Using reasonable measures to keep your information secure.
  • Never selling your information or sharing it with third parties for marketing purposes.
  • Only sharing your information in limited circumstances, such as to improve this site, to comply with the law, for the research study stated above, or to protect you and others.
  • Retaining your data for the shortest possible time that is consistent with maintaining, understanding, and improving this site, our obligations under law, and the research study stated above.

Be aware:

  • Any content you add or any change that you make to this site will be publicly and permanently available.
  • If you add content or make a change to this site without logging in, that content or change will be publicly and permanently archived in the public interest; your content or change will be attributed to the IP address used at the time rather than a username.
  • Our community of volunteer editors and contributors is a self-policing body. Certain administrators of this site, who are chosen by the community, use tools that grant them limited access to nonpublic information about recent contributions so they may protect this site and enforce policies. This includes any data you enter into this wiki, including, but not limited to, your email address.
  • For the protection of this site and other users, if you do not agree with this Privacy Policy, you may not use this site.


Thank you to Wikipedia for the original source of the text on this page.