Just starting out
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Just starting out? It can seem there is a lot to do all at once. Just remember that you do not need everything on Day One. This website will help, as when you need something you can just come here and take what you need.
One document you will need at the beginning (especially if you live in England and are aiming for a PHB) is a Care and Support Plan. These Plans really are unique to the individual so as a starting point, have a look at this page.
The idea for this page is that it contains useful help for when you just starting out to run a care budget, or just need guidance. If we were to add this help directly, we believe that we will be duplicating what is already out there on the internet, and, add the risk of not keeping it up to date. Providing links is a way around this. So if you have links - just add them, or, email them to us at [email protected].
The links are not validated by us, we've just heard good things about them or have been asked to add them by the organisation themselves. You also need to note that some of the organisations charge for their services. You can always feedback to us on how useful they were over in the Discussion forum.
General and really good - start here
The National Health Service (NHS) in England are the source of Personal Health Budgets, click [here].
peoplehub is an independent Community Interest Company, led by people with lived experience of personal health budgets, and aimed at offering useful information, connecting people and influencing how personal health budgets are implemented. Their web site has been written by those with lived experience, click [here]. Check out their guides too [here].
InControl are a national charity working for an inclusive society where everyone has the support they need to live a good life and make a valued contribution, click [here].
The ILG Community is a UK wide network of individual employers offering peer support via a private Facebook group. It is free to join and their membership is made up of individual employers, Direct Payment advisors and employment law specialists, click [here].
Places for care and support planning and gaining that care budget
The National Health Service (NHS) in England have produced this guide to Continuing Healthcare assessments - and it's in multiple languages, click [here].
think local act personal offer help on care and support planning, click [here].
Beacon offer help on care and support planning, a toolkit and much more. Click [here].
The Office for National Statisitics have provided these guides that show the access to adult social care funding in England. Click [here].
Rethink Mental Illness have a great set of guides for care and support planning for social care. Click [here].
Care To Be Different offer great advice and resources for the NHS Continuing Healthcare (CHC) process. Click [here].
Cerebra offer a toolkit for accessing the care services you need, click [here].
The Professional Records Standards Body might not be your first place to look for a Care and Support Plan, but it does have a comprehensive template you can use. Click [here].
Tools for caring and running the budget
Multi Me have had good reviews about their software for building a life around the person with disabilities, click [here].
Patients Know Best is one of those apps that you'll wonder why no one did it before. Linked in with NHS and provides one place to hold all your medical records, letters, appointments and files click, [here].
Jointly is a mobile and online application created by carers for carers. It combines group messaging with other useful features including to-do and medication lists, calendars and more! Click [here].
Log My Care allows care staff to log care and tasks, providing an overview of the care given by your team, though might be more aimed at care homes. Click [here].
Rotacloud have had some very good reviews for how it creates and communicates your staff rota, click [here].
Places you should visit
Health Your Way was established to meet the growing demand for people seeking personalised health and social care. Click [here].
Imagineer offer support brokerage and training, but also develop and support small, innovative projects and enterprise ideas. Click [here].
Bringing Us Together offer support under the banner of: Helping parent carers feel “I can do this!”. Click [here].
Contact is a charity for families with disabled children to support families, bring families together and help families take action for others. Click [here].
Know any useful Facebook pages? Let us know, we'll add them here. Here are a few to start: here here here
Training for you and your staff is essential
The Social Care TV website offers a wide range of very affordable training course, with a good description. The employer can set up a 'master' account and then check progress of all their staff's training who have their "subsidiary" accounts. Click [here].
The Health and Safety Executive website has some great resources. This link takes you to one on manual handling. Click [here].
The Inclusion Me website has a focus on Occupational Therapy, with some good articles. This link takes you to one on manual handling and the law. Click [here].
Aid Training offer tutor-led instruction by people with real experience of relevant work environments. Click [here].
Cherry Training source training courses for clients who want to embark on personalised training that will enrich and better their lives. Click [here].
Train With Care is a bespoke clinical and mandatory training service for people with complex needs (adults and children). Train With Care is recognised as an Endorsed Provider by Skills for Care which is the bespoke quality mark that is given to the best learning and development providers within the adult social care sector. Click [here].
Howe2 Training & Consultancy deliver “real life training based on in depth sector experience". Click [here].
Complex Care Training and Consultancy “ deliver specialist training to ensure that those providing care to children, young people and adults with medical needs are both skilled and confident to deliver safe care". Click [here].
Headucate “are a nurse-led service, e.g. Headucate provide nurse-led mental health workshops tailored to meet the needs of employers, employees, customers, carers, young people, teachers and health professionals". Click [here].
Other places offer guidance for staffing
The UK government has published a guide to employing for the first time with a checklist. Click [here].
Iggy Patel has published a guide for a do it yourself payroll method. Click [here].
Care Quality Matters offer checklists and templates but there is a charge, although with a free trial, click [here].
Leeds cil have lots of resource about employing care staff, click [here].
Wiltshire Centre for Independent Living offer staffing templates, click [here].
Disability North offer a whole range of guides, some free, some services are chargeable. Click [here].
Is your PA or carer employed or self-employed? This can be a difficult one to work out so here are two links that can help, here and here.
Independent Lives is a user-led charity and social enterprise working to change the lives of disabled people, people with support needs and carers, click [here].
Independent Provider of Special Education Advice (IPSEA) offer good advice around educational issues, Independent Provider of Special Education Advice, click [here].
HF Trust (hft) is a long-established charity. Their document "Money Matters" offers guide about financial matters, for family carers of adults with learning disabilities and/or autism, click [here].
The legal side
Irwin Mitchell offer legal templates, click [here].
Local and national government organisations
Department of Work and Pensions for benefits, click [here].
Office of Disabilities Issues for information on disabilities funding, click [here].
Her Majesty's Customs and Excise for Employment Taxes, National Insurance, VAT, click [here].
Government portal for employees’ and employers’ rights, click [here].
Equality and Human Rights Council for disability rights and complaints, click [here].
Home Office/Equalities for Equalities information, click [here].
Write to your elected politicians, for example, to complain to your councillors or MP, click [here].
Local Government Office who are the ombudsman for complaints about your Local Authority, click [here].